I am very excited to announce that my hometown of Middleborough has adopted my book on dwarfism, “Little People,” as its high-school summer-reading book. Students and teachers at Middleborough High School (from which I graduated in 1974) will be asked to read “Little People” and be prepared to discuss topics such as genetics, history and disability throughout the school year. I’ll be visiting a few times.
When Doug Haskell, who chairs the MHS English department, told me about the selection a couple of months ago, I had to scramble. The book has been out of print for several years. There was also no reliable way of estimating how great demand would be — the full text of the book is already available online for free, and no doubt a lot of students will try to read it that way.
So, working with Bronwen Blaney at the Harvard Book Store of Cambridge, I put together a print-on-demand paperback edition, thus eliminating the need to print a bunch of copies that may or may not sell. Not to go too heavy on the marketing, but I was pleased with how well it came out — it really looks and feels like a trade paperback. The price, $16, is pretty reasonable, given that the list price of the hardcover edition was $25.
I have completely retooled the website using WordPress.com. I’ve also created a Facebook group, where I hope students, teachers and anyone else who is interested will feel free to discuss “Little People” and issues related to dwarfism.
Anchalee Chourattana takes an order at Thaitation.
Brown Sugar‘s announcement that it would close the doors at its Fenway location in early 2009 had the makings of a culinary disaster. Coupled with a fire that wiped out six good-quality, affordably priced restaurants on nearby Peterborough Street, it appeared that what had once been a foodie oasis would instead become a wasteland.
Fortunately, those who appreciated Brown Sugar’s outstanding Thai food did not have to wait long. In February 2009, the restaurant reopened under the name Thaitation. Even better, the menu hardly changed — no surprise, given that the new owner, Ratana Chourattana, had been a cook at Brown Sugar for 13 years, according to this story in the Fenway News.
Drunken noodle (click for larger size)
Why am I telling you this? My Reinventing the News class is putting together a Google map of our favorite places to go and things to do within about a mile of the campus — a “Newcomer’s Guide to NU.” This is my contribution.
Thaitation has the feel of a small neighborhood place and can get a bit cramped. My lunch companion, Susan, and I arrived a bit before noon last Friday and were seated immediately by a window. Be forewarned, though: If you come much later than that, you may find yourself standing in line.
I ordered the drunken noodle with pork ($8.50), flat rice noodles with green beans, pepper, onion and fresh basil, all of which was stir-fried in hot chili. It was fresh and hot, ideal for a cold day on which snow had made its last (let’s hope) ugly appearance of the spring. But it wasn’t nearly as spicy as I’ve had it in the past, either at Brown Sugar or Thaitation. Some might prefer it that way, but I like to break into a good sweat when I’m eating drunken noodle.
I also ordered a Thai ice coffee ($2.95), an odd choice given the weather. But the mixture of coffee and sweetened condensed milk is too good to pass up under any circumstances.
Pad Thai (click for larger size)
Susan played it safe with pad Thai ($8.50), which combined rice noodles with shrimp, chicken, egg, scallion, bean sprouts and ground peanuts. She also had the homemade limeade ($3.50), which, if I’d been paying more attention to the menu, I might have tried myself.
The pad Thai, Susan reports, “didn’t skimp on chicken or shrimp,” had “lots of peanut flavor” and was moist — an important consideration given how quickly pad Thai tends to dry out. She gave the limeade a big thumb’s-up as well.
At this point it’s uncertain whether the Peterborough Street restaurants will ever be back. El Pelón, a well-loved Mexican restaurant, recently reopened in Brighton, a considerable distance away. Mike Mennonno, a local blogger, writes that plans recently filed by the block’s owner call for upscale establishments that probably mean the “locals will be priced out.”
Thaitation, though, stands as a shining example of the way things were in the Fenway. Not to mention a really good place to eat.
Thaitation, located at 129 Jersey St., in the Fenway, is open Monday through Thursday from 11 a.m. to 10 p.m., Friday from 11 a.m. to 11 p.m., Saturday from noon to 11 p.m. and Sunday from noon to 10 p.m. Call (617) 585-9909.
Billy Barty and Midgets of America gather in Reno, Nev., in 1957.
There’s a fascinating story in today’s New York Times about a theme park in China that stars people with dwarfism. Sharon LaFraniere writes that the park, the Kingdom of the Little People, is controversial because it depicts dwarfs in demeaning roles. And there’s no doubt it’s jarring to modern Western sensibilities. But I’m not sure it’s really that simple.
For one thing, it’s clear from the story that, for people with disabilities living in China, the Kingdom of the Little People is a pretty good gig. Here’s a relevant excerpt:
Many performers said they enjoyed being part of a community where everyone shares the same challenges, like the height of a sink. “Before, when we were at home, we didn’t know anyone our size. When we hang out together with normal-size people, we can not really do the same things,” said Wu Zhihong, 20. “So I really felt lonely sometimes.”
For another, I think those of us involved with the dwarfism community sometimes tend to forget the reality of the not-too-distant past. Gary Arnold, spokesman for Little People of America, is quoted as saying, “I think it is horrible. What is the difference between it and a zoo?”
Arnold’s point is well-taken, to an extent. Yet LPA was founded by an actor, the late Billy Barty, and the group originally came together in the late 1950s under a banner that read “Midgets of America” — something that would provoke protests today.
Moreover, a number of people with dwarfism, including intelligent, successful people who are LPA members in good standing, have exploited their unique features to get work in the entertainment business. And movies like “The Station Agent” remain the exception.
In the last few years we’ve seen the mainstreaming of dwarfism, due in large measure to television series such as “Little People, Big World” and “The Little Couple.” As I’ve written before, I think such shows are, overall, a positive. Yet we’re kidding ourselves if we think they’re not on some level exploitive as well. Who would sit on the couch and watch average-size, non-dysfunctional (my Gosselin caveat!) families go about their daily lives?
Finally, you’ll note that I did slip in the word “dwarf” even though Arnold is quoted as saying that some find it offensive. Unlike the M-word, on which there is universal agreement as to its offensiveness, the notion that “dwarf” is offensive is not a mainstream view within LPA, although Arnold is right that there are those who don’t like it. But it is a word my daughter uses, and I am not offended.
You didn’t think I was going to close this out without flogging my book, did you? Here you go.
You will also note, when you look at the photos that accompany the Times story, that one of them is the same picture that was hilariously misidentified yesterday as Secretary of State Hillary Clinton and Chilean President Michelle Bachelet.
Dylan meets the Obamas (White House photo; click on image for larger size)
There are so many Bob Dylans that I don’t want to read too much into this. For all we know, Dylan will hit the road with Pearl Jam next year and play a couple hundred hard-rock shows. But two lovely videos suggest that he is settling into the twilight of his career following his unexpected triumphs of the past dozen or so years.
I’ll deal with the better-known example first: his recent performance at the White House of “The Times They Are A-Changin’.” Backed by just Tony Garnier on upright bass and pianist Patrick Warren, Dylan offers an interesting contrast. He doesn’t seem to know what to do with his guitar (in fact, he’s spent most of his time on stage in recent years randomly stabbing at an electronic keyboard), and he stops and starts several times. Yet he’s right on top of it vocally, singing a downbeat version of what was once a confident anthem. It bears repeated viewing — and listening.
The second is a live-in-the-studio version of Woodie Guthrie’s “Do Re Mi” (it’s the second video here). Dylan plays guitar, accompanied by Ry Cooder on electric guitar and Brian Wilson collaborator Van Dyke Parks, of all people, on piano. As with the White House performance, Dylan’s singing combines his characteristic ragged edges with a softness and sweetness that I’ve rarely heard from him before.
I’m struck by what an effective, evocative singer Dylan can still be when his quiet rasp isn’t being overwhelmed by a full band. I’m also struck by the humility of these performances. The elderly-Western-gunslinger persona that he adopted during the past decade has been replaced by something more natural, more human.
None of us knows how much Dylan’s got left to give. His collaboration last year with Grateful Dead lyricist Rob Hunter, “Together Through Life,” was fun, but hardly up to his recent standards. His Christmas album was largely a joke, though I like the video for “Must Be Santa.” He is 68 years old and has a lot of miles on his odometer.
But he’s still capable of surprising us — and moving us.
Here’s the deal: the R-word is not an innocuous euphemism. It’s as hateful and belittling and bullying as racial slurs and homophobic epithets and sexual harassment.
Now, of course, Falcone is not responsible for her co-workers at the Herald. But it’s long past time for editors there to ban the word “midget,” a demeaning term for people with dwarfism. I realize Howie Carr’s head might explode the next time he tries to describe Bill Bulger as something other than “the Corrupt Midget,” but he’ll get over it.
By the way, it’s nice to see that we’ve evolved to the point at which people are more offended by the R-word and the M-word than they are by the F-word.
Last week I wrote about a new, cheap test that will tell prospective parents whether their children are at risk of having one of 100 or so different genetic conditions, including two forms of dwarfism.
Friend of Media Nation Clif Garboden sent along this photo of the late Howard Zinn, debating the Vietnam War in Boston University’s Hayden Hall in 1967. The photo is Garboden’s copyrighted work, and is republished here by permission.
A major theme of my 2003 book on dwarfism, “Little People,” was what would happen in the not-too-distant future when inexpensive tests would be developed to detect the 100 or so most common genetic conditions in utero. Would dwarfism and other human variations be eliminated? How would it change our uneasy relationship with difference, which we both celebrate and fear?
Now it’s starting to happen. The New York Times reports today that a company called Counsyl has come up with exactly such a test. It costs only $698 for couples. It’s not an in utero test; rather, the aim is to tell would-be parents whether they are carriers of genetic conditions. And there are questions as to how effective the test will be. But we have finally reached the starting line.
The most common form of dwarfism, achondroplasia, is not on the list, and there’s a good reason for that: it’s a dominant condition. If you have the gene, you’re a dwarf, and a carrier by definition. But diastrophic dysplasia and cartilage-hair hypoplasia, recessive forms of dwarfism, are on the list. (For those of you who have seen “Little People, Big World,” Amy and Zach Roloff have achondroplasia. Matt Roloff has diastrophic dysplasia.)
And what are you supposed to do if you learn you are a carrier? Counsyl calls these “Preventable Genetic Diseases Covered by the Universal Genetic Test.” We get the picture, and it’s mighty chilling.
We are all entitled to as much information as possible. It’s up to each of us to decide what to do with that information. Nevertheless, you can’t help but be concerned about where this is going to lead.
J.D. Salinger, who died Wednesday at the age of 91, spent the last year of his life waging a wrong-headed battle against the fair-use exemption to copyright law, which allows for the use of copyrighted materials without permission under certain limited circumstances.
A Swedish humorist who goes by the name of J.D. California wrote a sequel to Salinger’s most famous work, “The Catcher in the Rye,” called “60 Years Later: Coming Through the Rye.” Salinger sued for copyright violation, even though parody is protected by fair use.
Last summer I gave Salinger a Boston Phoenix Muzzle Award for this outrage against free speech. I am, of course, under no illusions that Salinger ever knew or cared. What’s more disturbing is that the courts held up publication of “60 Years Later,” and that the case is still pending.
I am very excited to announce that my hometown of Middleborough has adopted my book on dwarfism, “Little People,” as its high-school summer-reading book. Students and teachers at Middleborough High School (from which I graduated in 1974) will be asked to read “Little People” and be prepared to discuss topics such as genetics, history and disability throughout the school year. I’ll be visiting a few times.
